EXCLUSIVE: How sickness turned into Passion to support people with bleeding disorder

By Lynda Kiyeng

1) Tell us a little about you? 

I was born here in Nairobi in February 17 1993, at Nairobi hospital.
I went to primary school at st Georges school and later st Nicholas school there after transitioned to high school in Kitusuru boys in form one later transferred to Pumwani boys then finished at Nairobi Pentecostal church senior school, after which I passed and joined university of Nairobi law school.

I graduated with honors in 2016 and later did my post graduate diploma at the Kenya school of law, passed my bar exams and was admitted to the bar in February 14 2019

2) What motivated you to have a soft spot for Haemophilia in your life?

My motivation for haemophilia is that first of all I was born with the condition, I was first diagnosed two weeks after birth and since then my life has not been normal. I had to grow up and face the challenges of living with a bleeding disorder, having maneuvered through life with the condition and being aware of the challenges young boys and girls go through with this condition, I decided to be an advocate for people with bleeding disorders.

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I decide to ensure that their quality of life is much better than what we experienced at a young age. Some of the activities i take to achieve this includes creating awareness, resource mobilization, capacity building of medical practitioners and lobbying the government for inclusion and support by providing us with drugs and funding which it is yet to materialize.

3) How did you get to be the legal advisor at Haemophilia Kenya?

I got to join the board and the executive committee of the Kenya hemophilia association back in 2017 and automatically became legal counsel by virtue of me being a lawyer and a strong advocate for the the same

4) What’s the future of law in Kenya?

Well as for the future of law in Kenya we still have a long way to go in terms of implementation of the rule of law which seems to be a theory rather than an actual fact.

The judiciary is facing a number of challenges mostly politically instigated vices and impunity such as bribery and corruption which curtail the the implementation of the rule of law. Institutions such as the executive have been holding the judiciary hostage such as the recent budgetary deductions for the judiciary by parliament. This is clear that the implementation of the rule of law which requires systems, structure and funding to ensure justice is not only heard of but seen to be actually done, therefore we have a journey but as officers of the court we shall not relent to ensure justice and the rule of law is implemented to the latter.

5) What is your message to people living with haemophilia?

My message is that it is only through hope and determination that got me this far and therefore i do encourage my blood brothers and sisters to keep the faith as better days are yet to come. We are making great strides in terms of advocacy and setting up the requisite structures such as more satellite clinics like we recently did in Voi in conjunction with our donors the Novo hemophilia foundation to ensure we have a comprehensive health system which of course will only be achieved once the government pulls in its weight and support our cause, in summary i would therefore say there is hope for the bleeding disorders community

6) What are the procedures for someone to join the Haemophilia Society of Kenya?

There is no procedure in regards to joining the haemophilia community, if one is not directly affiliated with the bleeding disorders community that is by virtue of one being either a patient parent /caregiver, sponsor, all well wishers and volunteers are all welcome as we are a global community that encourages partnership and voluntarism to ensure our cause is achieved, therefore all are welcome in whatever capacity one deems fit

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7) What’s you message to young people venturing into law?

My mantra is I live a life of faith where before all others God is the pillar of all possibilities secondly a life lived with a positive mind with good intentions will only attract the same energy and people of similar energy which yields success and prosperity

8) What mantra do you live by?

 We are all put on this earth with one purpose many at times we live a life devoid of purpose and instead of searching for it we hide behind the viscicitudes of life making excuses, however a man without purpose will have nothing to live for but himself. I therefore encourage all to seek deeply within their spirit with introspection and meditation and supplication to God with a view of discovery of what and why we are on this earth because at the end of the day that’s all that matters.

9) Your parting shot.

Well my message to aspiring law students is that this unlike other careers is a profession which requires alot of discipline, diligence, a stead fast spirit and most of all endurance because it is a long and tough journey that if you falter along the way you may fail to achieve the desire to be an officer of the court therfore to my junior colleagues i encourage them to also keep the faith and be ready to sacrifice, the profession definitely comes at a cost

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